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Mitte Mai 1995 fand - vom Bundesministerium für Familie, Senioren, Frauen und Jugend gefördert - in Hamburg eine große Tagung statt, auf der sich modellhafte Konzepte der Dementenbetreuung präsentierten.

Damals entstand die Idee, den Austausch über die Erfahrungen mit den Betreuungsansätzen fortzusetzen. Seit November 1995 treffen sich Menschen aus verschiedenen Berufsgruppen (Pflegekräfte, ÄrztInnen, PsychologInnen, SozialarbeiterInnen, ErgotherapeutInnen, HeimleiterInnen, Angehörige der Alzheimer-Selbsthilfe-Bewegung, Seniorenbeiräte) halbjährlich für 1 ½ Tage an wechselnden Orten in ganz Deutschland. Anlässlich des 5. Treffens in Dormagen am 31. Oktober 1997 wurde der Verein „Deutsche Expertengruppe Dementenbetreuung“ gegründet. Damit haben sich erstmalig bundesweit Menschen aus Einrichtungen mit Modellcharakter in der Dementenbetreuung, die den unterschiedlichsten Berufsgruppen angehören, zu einer handlungsfähigen Gruppe zusammengeschlossen. Das derzeit verfügbare Expertenwissen um die Versorgung demenzkranker Menschen ist in dieser Gruppe versammelt.